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Committee on Disability Matters: Participation in Community Life for Persons with Disabilities: Discussion (22 Oct 2025)

Tom Clonan: Go raibh maith agat, Chair. I thank the witnesses for coming in and for the presentations. When my son was diagnosed with a neuromuscular disease he was 18 months old and the prognosis put to us was that he would be a wheelchair user. Obviously, that was very shocking and completely alters your sense of what will happen next. I was walking down Grafton Street afterwards and saw a guy in...

Committee on Disability Matters: Participation in Community Life for Persons with Disabilities: Discussion (22 Oct 2025)

Tom Clonan: It was increasing; that is good. What are the principal barriers to participation for disabled citizens? What can we do, as public representatives, to help Ms McTavish in her mission for inclusivity, diversity and equity?

Committee on Disability Matters: Participation in Community Life for Persons with Disabilities: Discussion (22 Oct 2025)

Tom Clonan: It is not a criticism.

Committee on Disability Matters: Participation in Community Life for Persons with Disabilities: Discussion (22 Oct 2025)

Tom Clonan: I just want to say that, as a family, we have had very positive experiences with the GAA and Croke Park and, locally, our clubs are great. It is the community wrapping itself around people. Qualitatively, when things in disability can be quite challenging and bleak in many cases, what the witnesses' organisations provide is hugely positive. I have to go into the health committee, so...

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: Apologies I was not here earlier as I was at the disability matters committee meeting. If any aspect of my question has already been dealt with I apologise in advance. As we have heard, every family in Ireland has been impacted by cancer. I lost a sister to breast cancer when she was 43. She was very unlucky as she had a very aggressive tumour. My mum passed away from cancer. I had an...

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: Of course, yes.

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: In the 30 seconds left, no pressure, aside from the Danish model, on medical leadership, should we have a greater emphasis or greater autonomy for medics? My own bias is that all of our specialties should be medically led. There is an element of managerialism in the HSE that is getting in the way of some of this progress.

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: I thank the witnesses for all of the progress that has been made generally in terms of cancer treatment. I have a number of concerns. I am of the view that there could be a fairly easy fix for one of them. We have the lowest rate of availability for newly licensed cancer medicines within Europe. On average, the delay in this regard is up to two years. I will address my questions to Mr....

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: Thank you very much.

Joint Oireachtas Committee on Health: Current Issues Relating to Health Services for Cancer: Discussion (22 Oct 2025)

Tom Clonan: There are some very good people and good clinicians who are experiencing reprisals. Mr. Canavan is familiar with the case in question. If it could be dealt with and expedited, it would really help them. They are living in an existential hell, essentially. These are good people. I have met them.

Seanad: An tOrd Gnó (Atógáil) - Order of Business (Resumed) (21 Oct 2025)

Tom Clonan: I raise the difference between political ambition and political entitlement. It has come very much to the fore during this presidential campaign. Ambition is when you are not happy with the state of affairs and the status quo and not happy with your role and status in life. To change that situation, though, you put the work in. We have seen two candidates who have put considerable work in...

Seanad: An tOrd Gnó (Atógáil) - Order of Business (Resumed) (21 Oct 2025)

Tom Clonan: Well said.

Seanad: Nithe i dtosach suíonna - Commencement Matters: Tax Code (16 Oct 2025)

Tom Clonan: I thank the Minister of State for coming here this morning. I am raising this matter on behalf of James, Sheila and Kieran Sexton. They are Cork based. They find themselves in a very difficult position because they do not have children. James and Sheila are a married couple. James’s brother Kieran has returned from London, as many Irish people do over the generations. Kieran has...

Seanad: Nithe i dtosach suíonna - Commencement Matters: Tax Code (16 Oct 2025)

Tom Clonan: Unfortunately, we live in an era of moral legalism. It may well be the case that the Attorney General argues that it does not breach the Equal Status Acts, but it is clearly wrong. In a time of moral legalism it has never been more difficult to tell the difference between what is right and what is wrong. I put it to the Minister of State that it has never been more important that we draw a...

Committee on Disability Matters: Autonomy and Integrity for Persons with Disabilities: Discussion (15 Oct 2025)

Tom Clonan: I thank everybody for being here this morning. I have to declare a conflict of interest in that I worked with the Mental Health Commission for 11 years. Having attended hundreds of mental health tribunals, I know the commitment that everybody puts into that process. I have been in and out of the courts for the past 20 years as, I hasten to add, a witness. As a layperson, I see the changes...

Committee on Disability Matters: Autonomy and Integrity for Persons with Disabilities: Discussion (15 Oct 2025)

Tom Clonan: Forgive me if this is a stupid question but, again, I am a layperson on the periphery of this. Are those who come to assess capacity professionally trained? Do they come from a particular professional background? We know more broadly as a committee the challenges with recruitment and retention across all the different clinical and professional grades. Notwithstanding the social model that...

Committee on Disability Matters: Autonomy and Integrity for Persons with Disabilities: Discussion (15 Oct 2025)

Tom Clonan: It is such a critical moment for people, and it must be very daunting, so I really appreciate all the great work the witnesses do. I thank them.

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