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Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: We had lengthy discussions on this subject in the past and I came away from them with a somewhat more clear understanding of it. Is it correct that individual health identifiers were essentially put in place during the Covid-19 pandemic? Was that the starting point or when the process accelerated?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I am trying to tease out if this is more of a practical thing. It is not that the PPSN will replace the IHI. It is matching it.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: The IHI is essentially the spine, if you like.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: Most people will know their PPSN. How does someone find out what their IHI is?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: Rather than beginning to appear, if I wanted to find out mine right now, how would I go about it?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: If somebody wanted to avoid confusion and wanted to know what his or her IHI is, is Mr. O'Connor saying there is no way of finding out?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I am talking about now.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: What about this new app we have heard a lot about.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: It could be. I downloaded the app. I do not know if my IHI is visible on that, or is it?

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I understand that. We talked about safeguards earlier. I have questions about how we can protect people's data. People are particularly precious about giving out their PPSN. We have had data breaches in the past. In the HSE, we had a cyberattack. Even online, there are lots of scams designed as emails that people get asking to send on a PPSN because it is valuable to scammers. It is...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: The reason I am asking these questions is that there is an opt-out. People can opt out. There is a series of amendments which we will come to later. We do not want to see people opting out. We want to see people opting in. To opt in, there needs to be that level of transparency. When people see their PPSN is being linked to an IHI, they will want to better understand it. I have made...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: If the app is a way putting all of that together, that would be useful.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I move amendment No. 5: In page 9, between lines 19 and 20, to insert the following: “Progress report 7. The Executive shall, after 18 months and within 24 months of the passing of this Act, submit a report to the Houses of the Oireachtas outlining: (a) progress towards system-wide Digital Health Records; (b) progress on integrated financial management systems and...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I accept that. It would be useful if the officials and the Minister appeared before the committee on a yearly basis or every second year. It would be useful to get that update.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I certainly agree that we need to put pressure on the Department of public expenditure and reform, whether it is the Minister or the officials, because there has been pushback. I submitted freedom of information requests on this subject. I have read some of the responses. Other officials in previous hearings would be aware of some of the concerns. I understand those concerns because there...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I will add one final point to that. We also had very lengthy discussions in this committee on health spending. Through FOI requests and leaked information, we learned about meetings between officials from the Department of public expenditure, reform, digitalisation and officials from the Department of Health regarding the deficits that were in place for a number of years. The Minister...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: That is something we need to push and impress on that Department as well. I do not want to overstate the Department's views, but it is important.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: I will withdraw it.

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: A lot of questions arise from this. It is more about getting clarity. We spoke earlier of the need for buy-in and trust. It is important that we tease out in which circumstances a person would not get access to data. These sections relate to withholding data for people in certain circumstances where it “has reasonable grounds for believing that such access would be likely to cause...

Select Committee on Health: Health Information Bill 2024: Committee Stage (16 Jul 2025)

David Cullinane: Does it prescribe those kinds of instances? Mr. O’Connor says a bit of latitude, but sometimes a bit of latitude means you can drive a horse and carriage through it. In circumstances like the ones Mr. O’Connor just explained, there may be a rationale, but the concern is that a medical practitioner would not provide the information because in their view it was protecting their...

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